Dementia-related stigma > Wave 1
Longitudinal Wave
General Information
Title
Wave 1
Project Number
370.1
Abstract
This study focuses on the stigma that exists in Dutch society about dementia and dementia-related factors. This is the first wave of two waves.
Longitudinal Type
Longitudinal Wave
Begin date
04-12-2023
End date
31-12-2023
Researcher
Anne Kolmans (Radboud University Medical Center); Sascha Bolt (Tilburg University, Tranzo)
Publisher
Centerdata
Copyright
© 2025 Centerdata
DOI
https://doi.org/10.57990/dhaj-rt59
Funding Organization
ODISSEI
OCW (Domeinplan SSH)
Tilburg University
Tranzo
OCW (Domeinplan SSH)
Tilburg University
Tranzo
Datasets and documentation
View Documentation
Codebook in English
Codebook in Dutch
Data Files
English SPSS file
English STATA file
English CSV file
Variables
| Variable name | Variable Label | Variable Type |
|---|---|---|
| nomem_encr | Number of the household member encrypted | directly measured |
| yz23a_m | Year and month of the field work period | directly measured |
| yz23a001 | I have watched a movie or television show in which a character depicted a person with dementia. | directly measured |
| yz23a002 | My job involves providing services/treatment for persons with dementia. | directly measured |
| yz23a003 | I have observed in passing, a person I believe may have had dementia. | directly measured |
| yz23a004 | I have observed persons with dementia on a frequent basis. | directly measured |
| yz23a005 | I have dementia. | directly measured |
| yz23a006 | I have worked with a person who had dementia at my place of employment. | directly measured |
| yz23a007 | I have never observed a person that I was aware had dementia. | directly measured |
| yz23a008 | My job includes providing services to persons with dementia. | directly measured |
| yz23a009 | A friend of the family has dementia. | directly measured |
| yz23a010 | I have a relative who has dementia. | directly measured |
| yz23a011 | I have watched a documentary on the television about dementia. | directly measured |
| yz23a012 | I live with a person who has dementia. | directly measured |
| yz23a013 | I feel confident around people with dementia. | directly measured |
| yz23a014 | I am comfortable touching people with dementia. | directly measured |
| yz23a015 | I feel relaxed around people with dementia. | directly measured |
| yz23a016 | I am afraid of people with dementia. | directly measured |
| yz23a017 | People with dementia should always be supervised. | directly measured |
| yz23a018 | People with dementia are unpredictable. | directly measured |
| yz23a019 | People with dementia are very much like children. | directly measured |
| yz23a020 | People with dementia are incapable of making any personal decisions. | directly measured |
| yz23a021 | People with dementia are no longer themselves because they have dementia. | directly measured |
| yz23a022 | People with dementia can enjoy life. | directly measured |
| yz23a023 | People with dementia can feel when others are kind to them. | directly measured |
| yz23a024 | It is possible to enjoy interacting with people with dementia. | directly measured |
| yz23a025 | People with dementia are a burden to their family. | directly measured |
| yz23a026 | People with dementia are a burden on the healthcare system. | directly measured |
| yz23a027 | I would exclude people with dementia from activities. | directly measured |
| yz23a028 | I would ignore people with dementia. | directly measured |
| yz23a029 | When people get older, they need to lower their expectations of how healthy they can be. | directly measured |
| yz23a030 | The human body is like a car: when it gets older, it gets worn out. | directly measured |
| yz23a031 | Having more aches and pains is an accepted part of aging. | directly measured |
| yz23a032 | Every year that people age, their energy levels go down a little more. | directly measured |
| yz23a033 | I expect that as I get older I will spend less time with friends and family. | directly measured |
| yz23a034 | Being lonely is just something that happens when people get old. | directly measured |
| yz23a035 | As people get older they worry more. | directly measured |
| yz23a036 | It’s normal to be depressed when you are old. | directly measured |
| yz23a037 | I expect that as I get older I will become more forgetful. | directly measured |
| yz23a038 | It’s an accepted part of aging to have trouble remembering names. | directly measured |
| yz23a039 | Forgetfulness is a natural occurrence just from growing old. | directly measured |
| yz23a040 | It is impossible to escape the mental slowness that happens with aging. | directly measured |
| yz23a041 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. I feel fear. | directly measured |
| yz23a042 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. I feel pity. | directly measured |
| yz23a043 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. I react angrily. | directly measured |
| yz23a044 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. I feel annoyed. | directly measured |
| yz23a045 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. I feel the need to help this person. | directly measured |
| yz23a046 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. I experience incomprehension. | directly measured |
| yz23a047 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. I feel insecure. | directly measured |
| yz23a048 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. I feel sympathy. | directly measured |
| yz23a049 | How would you react to a person with dementia? Please indicate the extent to which you would feel this way. Makes me feel uncomfortable. | directly measured |
| yz23a050 | How could you describe a person with dementia? Try to form your answer in one or two sentences. | directly measured |
| yz23a051 | How do you interact with people with dementia? Try to form your answer in one or two sentences. | directly measured |
| yz23a052 | Earlier in this questionnaire you indicated that you have a family member/friend/acquaintance with dementia. Has your relationship with this person changed since he/she got dementia? | directly measured |
| yz23a053 | How has this relationship changed? | directly measured |
| yz23a054 | Was it difficult to answer the questions? | directly measured |
| yz23a055 | Were the questions sufficiently clear? | directly measured |
| yz23a056 | Did the questionnaire get you thinking about things? | directly measured |
| yz23a057 | Was it an interesting subject? | directly measured |
| yz23a058 | Did you enjoy answering the questions? | directly measured |
| yz23a059 | Starting date questionnaire | directly measured |
| yz23a060 | Starting time questionnaire | directly measured |
| yz23a061 | End date questionnaire | directly measured |
| yz23a062 | End time questionnaire | directly measured |
| yz23a063 | Duration in seconds | directly measured |
Response Information
Response Overview
Selected number of household members: 670 (100.0%)Non-response: 117 (17.5%)
Response: 553 (82.5%)
Complete: 553 (82.5%)
Incomplete: 0 (0.0%)
Collection Events
Period
04-12-2023 to 31-12-2023
Sample
Stratified sample by age of 670 panel members aged 16 years or older who completed the core study Personality in May/June 2023.
Collection Mode
internet survey
Fieldwork Note
A reminder was sent twice to non-respondents.